Not only the patient but the family need support and care too. They got burn out in term of energy and financially.
If you know any Parkinsons disease patient ,please give their support whatever you can afford -time,moral or money .
How do i know ? ....Because my father has Parkinson since 30 years ago. He is now 70 years old .As he was a top corporate man ,he had many friends and a lot of "relatives" .It is a 360*degree change today as he has only us -the family . Even his brothers and sisters try to keep distance from him .
The sad thing happens last week when his brother inlaw called my mom and said ," Good news for you and your family "
My mom ask what is it.
He continues."Well , there is this hospital that can operate the patient's brain and it can cure from the disease so it is a good news and your husband can a normal person".
While maybe his intention is good but the fact is he thinks that we do not do anything but sitting around since 30 years ago. He think that we are stupid and when we see the specialist , we did not ask the options available .
The fact is we did ask the doctor about this operation 10 years ago when he still cn walk. It is not new .
Imagine , this is just one comment. There are a lot of these unwanted comments to the patient's family due to the public misunderstood on the disease.
Let's alone financially. We are lucky because we have family business and good staffsto take care of the business . The patient need nursing and this will cost the family's time . Wife has to sacrifice her job just to take care of her husband. .....and the nursing still cost money as adult diapers, medicines etc are not FREE. In addition to the normal overhead cost such as food and utilities.
In Asia or Malaysia specifically ,there are a lot of patients' family struggling with the disease . They need our help.That's why I put up the donation button through paypal. They need a lot of our support. I just feel that even giving them a pack of diapers( will cost US10 packetof 10) will make their family happy.This is your choice and not a compulsary. You can donate yourself directly to the family at your hometown without us .The message is please help the family.
Coming soon , I will tell you on how to take care the patient's family.
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